The subreddit ban was a wake-up call but this extends beyond that: External/standalone websites like wikis and image sharing, Facebook groups, other social media sites, ect. Plus subs for specific topics and surgeries that weren't caught in the ban.
Trans healthcare is desperately under-researched, and unfortunately a lot of valuable information is sourced from people sharing their first-hand experiences. These groups are also a resource for finding information on specific surgeons: sharing experiences, results, timelines, and who to avoid. If this is lost it will set us back decades, if this is saved will save lives.
I'm not sure if I should name specific sites and subs or if that would put targets on their backs. I'm also not sure how to balance the sensitive nature of this data with needing to archive it-- these are photos that could get people outed, and different spaces are public/private to varying degrees.
I'm new to this and just figuring out how to get started contributing, but I hope raising the alarm and creating a place for discussion helps.