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U.S. medical schools aren’t teaching future doctors about 7.4 million of their patients
(www.statnews.com)
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I’m not sure about “not teaching” but probably not adequately teaching the importance of patient-centered care. I know it’s sort of a buzz word, but I can see in a couple of my nursing classes that it really is a different perspective. Taking people seriously about their goals and preferences for care instead of the semi-authoritarian style of “I’m the medical professional, so this is probably best.” Sure, some people wouldn’t make the same medical decision that you would as a professional, but people should get to decide that for their own lives. Sometimes it’s a lack of knowledge but in my experience, health care workers do not consider the patient’s words as much as they should.
My sister is extra sensitive to anesthesia. A health professional ignoring her or our families input during an emergency could definitely kill her.
Trusting that doctors won't override concerns is a major source of worry in an already stressful time for people who have atypical responses.
One strategy that can work is to find a primary care doctor that takes emergency calls out of hours. Asking emergency care providers to call a primary care physician for details on special considerations seems to be taken much more seriously than a request just expressed by family.
My wife is the exact opposite - she needs considerably more anaesthesia than most people. Every time she’s gone in for an operation the doctors have ignored her pleas and every time they are shocked when they realise she’s not properly anaesthetised. I have found most doctors don’t listen to their patients, especially women, let alone the family.