Haemochromatosis

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Haemochromatosis (also spelled hemochromatosis) is a hereditary condition causing the body to absorb too much iron, leading to iron overload in organs including the liver, heart, and pancreas.

This community is for people living with haemochromatosis, their families, and anyone interested in iron overload disorders.

Share your experiences, ask questions, discuss treatment, and connect with others.

Topics welcome here:

Diagnosis experiences and ferritin/transferrin saturation results
Phlebotomy/venesection treatment
Diet and lifestyle
Genetic testing and family screening
News and research
Questions for the community

Rules:

Be respectful and supportive
No spam or self-promotion

This is not a substitute for professional medical advice. Always consult your doctor.

founded 2 days ago

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noodNinja@sh.itjust.works

“Celtic curse” hotspots found in Scotland and Ireland with 1 in 54 at risk (www.sciencedaily.com)

submitted 2 days ago* (last edited 1 day ago) by noodNinja@sh.itjust.works to c/haemochromatosis@sh.itjust.works

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Lemmy needed a Haemochromatosis community.

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[–] noodNinja@sh.itjust.works 2 points 2 days ago

Pretty much sums it up. There are some other treatments researched very recently like synthetic hepcidin and gene therapy to correct the actual mutation. The hepcidin one was a successful human trial in Australia but at the end of it phlebotomy was still decided as the preferred method of treatment. I am waiting for an update on the gene editing treatment. Getting these things to market is a challenge unfortunately.