Chronic Illness
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for healthy people to share their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
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Respect the Group’s Purpose. It’s a support forum for people with chronic illness to vent and share and talk together. It’s not a place for healthy people to come and give their opinions.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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I have the enhanced rates for both daily living and mobility for PIP (disability benefits in the UK)
I have a social worker but she is pretty ableist and doesn't tend to provide accurate information, so she would not be much help
I am moving into a supported living facility soon where I will have to use up all of my savings for my care costs for the first few months to get me into the threshold for the council helping to fund the care so if I manage to research and get one soon (next few months) then money shouldn't be too much of an issue as I have a fair amount in savings I am willing to spend.
Unfortunately the places around me that seem to do wheelchair programs or discounts require you to be able to make it to an inaccessible area of town for me.
Don’t have much useful advice. Just wanna send u hugs.
You should be able to use PIP for that purpose hopefully (unless Starmers cuts affect you but I think that’ll take a while).
Ur situation of navigating bureaucratic nightmare is all too common :(.
Thank you, I really appreciate the hugs, this year has been hell for me in terms of chronic illness <3