this post was submitted on 02 Aug 2025
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[–] Cethin@lemmy.zip 30 points 2 days ago (1 children)

I feel so mixed when I hear about her getting better. I'm glad she is, but I also think about all the people who aren't fairly famous who don't have support networks that will handle everything for them who also had the same problems. I'm assuming most of them just died, and we don't hear about it. Also, sure, the government has programs to take care of people with disabilities like this, but from what I've heard of her symptoms, she wouldn't even have had the energy to fill out the paperwork to get on disability probably.

It sucks that I can't just be happy about this news and my mind wanders to these other people, but I can't help it. Anyway, I'm happy for her.

[–] A_Random_Idiot@lemmy.world 17 points 2 days ago (1 children)

I agree with you.

but on the flip side, her publicly documenting how utterly fucking ruined she was by the covid after effects did probably help people who were suffering from the same feel less alone and may have even increased understanding for them, even if in some marginal degree.

and iirc , she didnt even have the energy to listen to anything.much less fill out paperwork, at her worse.. i think for a long stretch of this she basically laid in a dark, silent room cause any stimulation at all was exhausting in the extreme.

[–] rumba@lemmy.zip 11 points 2 days ago

Yeah there are a lot of fucking Covid deniers shouting out that long Covid wasn't a thing. Some degenerate was trying to tell me about 3 months in that she was just faking it for the disability checks.

Her openness, and the other YouTubers that have posted on her behalf are making sure this stays based in reality. I'm sure there will still be people that say she has something not related to COVID but she is actually getting the word out there.

And honestly, perhaps because of her visibility some people have a little bit of hope for recovery. The treatment she's using does not work for everyone but for everyone that it works for that finds it because she's talking about it, she is making life worth living for a lot of people.