Chronic Illness
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for healthy people to share their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
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Respect the Group’s Purpose. It’s a support forum for people with chronic illness to vent and share and talk together. It’s not a place for healthy people to come and give their opinions.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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you can live with it and not understand it, but you can also understand it and not be able to empathize what its like to live with it. This statement sucks no matter how you look at it.
Yeah, the tweet's take is way too polarized. A one hour lecture? C'mon...
How long do you think doctors get to learn about diseases. It doesn't seem farfetched for a newly graduated doctor to have only had a 1 hour lecture on a disease, probably split over multiple ones. Plus some self studying. So if they never encountered it in real life afterwards, it doesn't seem too wrong, does it?
You're basically correct, but with a caveat or two. Disease tend to boil down to only a few basic etiologies: cancers = improperly dividing cells, autoimmune = body attacking itself, etc. There's a LOT of specific diseases out there, and the mind is finite. We discreetly go around the corner to check references (hopefully not Google) on our phones ALL THE TIME in the medical community, MDs to RNs. We might not know your exact symptoms off the top of our head, but even that varies from patient to patient within a single diagnosis. That's part of why a face to face consult is so important, and assuming that a doctor asking questions about your condition is ignorance is probably (usually) wrong... Also, I had a patient last week explain to me that high-voltage power lines cause cancer, and as a survivor of breast cancer, she was more knowledgeable about this than I was, so... It goes both ways sometimes.