U.S. News

2473 readers

121 users here now

News about and pertaining to the United States and its people.

Please read what's functionally the mission statement before posting for the first time. We have a narrower definition of news than you might be accustomed to.

Guidelines for submissions:

Post the original source of information as the link.
If there is any Nazi imagery in the linked story, mark your post NSFW.
Advocating violence is not allowed on Beehaw in general.
If there is a paywall, provide an archive link in the body.
Post using the original headline; edits for clarity (as in providing crucial info a clickbait hed omits) are fine.
Social media is not a news source.

For World News, see the News community.

This community's icon was made by Aaron Schneider, under the CC-BY-NC-SA 4.0 license.

founded 2 years ago

MODERATORS

alyaza@beehaw.org

rs5th@beehaw.org

Powderhorn@beehaw.org

Canceled appointments, pleas to shred records: Talks of autism registry put families on edge (www.jsonline.com)

submitted 3 months ago by alyaza@beehaw.org to c/usnews@beehaw.org

4 comments fedilink hide all child comments

archive.is link

When Dr. Amy Van Hecke picked up the phone on April 24, she was surprised to learn of a parent who wanted to discontinue a planned evaluation of their child's autism.

Losing a spot on the waiting list ― which can sometimes stretch years ― risks setting the treatment of a child back significantly, Van Hecke said.

Another call came into Van Hecke's clinic with a separate but related request: a family wanted their medical records destroyed.

Prior to the election of Donald Trump, such requests would have been unthinkable. But in the wake of the new administration's approach to privacy issues in general, and U.S. Health Secretary Robert F. Kennedy Jr.'s agenda regarding autistic people, new fears have risen over what the federal government intends to do with medical data.

Van Hecke, who co-directs the Milwaukee-based clinic, Next Step Clinic, shares the concern, considering National Institutes of Health Director Jay Bhattacharya announced at an all-staff meeting April 21 the intent to create "a new disease registry" focused on autism. That plan would amass private medical records toward a new autism study, extracting health data from electronic health records, pharmacy data, insurance claims and even wearables like smart watches and fitness trackers.

you are viewing a single comment's thread
view the rest of the comments

[–] t3rmit3@beehaw.org 4 points 3 months ago (1 children)

Step 1: Remove flouride, attack vaccines

Step 2: Announce a disability registry, so no one wants to get diagnosed, resulting in a plummet in diagnoses

Step 3: .....?

Step 4: "See, flouride and vaccines caused autism and disabilities!"

[–] jarfil@beehaw.org 2 points 3 months ago

Step 3: Forced treatment in El Salvador.