this post was submitted on 06 Mar 2025
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Lost my cousin to CF in the 90s, he was just 13 years old. It was a horrible condition with a lifetime of being in and out of the hospital, many hours long coughing fits, and highly invasive interventions. I'm really happy to see that progress at this level is being made.
The progress is incredible.
My kid had first Orkambi and then Trikafta from a very early age and if you don't know about the amount of medication the kid has to take and the daily physiotherapy and inhalation routine you'd never know anything was wrong with the kid.